BIRT-HOGG-DUBÉ SYNDROME
BHD FRANCE
Listen, help and support
BHD FRANCE
Testimonials
Below are four testimonials from BHD patients that will surely resonate with your own story.
Feel free to share your thoughts on our Facebook page or by email at contact@bhdfrance.org
In May 2021, following an extremely demanding professional activity, I experienced severe burnout at the age of 36. The fatigue and exhaustion were intense and persistent. I lost 10 kg in one month, then another 10 kg shortly afterward. My general practitioner ordered many medical tests to check if something else might be going on … (Read more)
I have always been an athletic person with an impeccable lifestyle. Just after finishing my studies, I met my wife. I was young and a little self-conscious about my rough-textured skin, something I had inherited from my father and grandfather. Still, I wasn’t worried … (Read more)
The first symptom of BHD that I noticed, without understanding its origin, was the appearance of white bumps on my forehead and on the sides of my nose, in 2014, when I was 66 years old. I did some research but found no clue or information that might suggest BHD … (Read more)
In 2010, at the age of 17, I suddenly felt a sharp, violent pain in my chest and left shoulder. I was short of breath, unable to lift my left arm or lie down. After an urgent visit to my general practitioner and several sleepless nights, I went to the emergency… (Read more)